I spent most of today working on my first video Blog and boy was it tuff.
My subject was “What is MS?” That part was easy. I found myself frustrated with all the details. I thought of how frustrated I was a year ago starting this Blog. Admittedly, my MS had definitely caused me to have cognitive issues. So much so that during my recent relapse I began to speak very slowly. My brain was having to work harder to transcribe my thought into language, and concentration…you could forget it. I used/use the blog to exercise my brain. My family never made me feel slow or tried to rush my statements. Clearly though, something was wrong with Mom.
Helpful: We had a family meeting where I told them just how much more this relapse was affecting me and in what ways, all very obvious at the time. It made a difference for me to sit down with them and SAY IT. I had to say, “I can no longer do this, this, and this. It hurts me to try. I need your help.” The meeting made it official. It wasn’t a pity party, although I was crying a lot. It was a matter of fact assessment of where I was at the moment. I continue everyday to push myself physically and mentally to fight this disease. Whatever it takes! So VIDEO Blog…I’ll be back!
Just SAY IT!
Resources: I can’t make my WordPress link button work right now! Completely baffled:/ The link and unlink buttons are not highlighted, so their dead 😦
Thoughts and Comments: Is there anything you’ve done to help your family understand? Help me out!