Just SAY IT!

I spent most of today working on my first video Blog and boy was it tuff.

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My subject was “What is MS?” That part was easy. I found myself frustrated with all the details. I thought of how frustrated I was a year ago starting this Blog. Admittedly, my MS had definitely caused me to have cognitive issues. So much so that during my recent relapse I began to speak very slowly. My brain was having to work harder to transcribe my thought into language, and concentration…you could forget it. I used/use the blog to exercise my brain. My family never made me feel slow or tried to rush my statements. Clearly though, something was wrong with Mom.

Helpful: We had a family meeting where I told them just how much more this relapse was affecting me and in what ways, all very obvious at the time. It made a difference for me to sit down with them and SAY IT. I had to say, “I can no longer do this, this, and this. It hurts me to try. I need your help.” The meeting made it official. It wasn’t a pity party, although I was crying a lot. It was a matter of fact assessment of where I was at the moment.  I continue everyday to push myself physically and mentally to fight this disease. Whatever it takes! So VIDEO Blog…I’ll be back!

Just SAY IT!

Resources: I can’t make my WordPress link button work right now! Completely baffled:/  The link and unlink buttons are not highlighted, so their dead 😦

http://www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/symptoms/index.aspx

Thoughts and Comments: Is there anything you’ve done to help your family understand? Help me out!

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4 Comments

Filed under MS Symptoms

4 responses to “Just SAY IT!

  1. Can’t wait to watch your video!

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  2. jazzycee

    If you EVER need help with anything, let me know. I’ve retired and have plenty of time!! Take care.

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  3. Hi Jazzycee:) If you are who I think you are (LOL) I do need help! I need your help going to the Flea Market this Sat. morning (LOL) Last year it was an awful experience. My symptoms were over the top and I was sure I’d never go back. The wonderful thing is, I have that as a benchmark for my I’ve improved. So let’s GO!
    http://msopenmic.com/2012/10/10/the-hunger-games-or-the-farmers-market/
    Gee, it’s also a benchmark for my blogging improvement(LOL) I can’t believe how LONG that post is:)

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  4. Hi Patrick, I’m excited about it. Stay tuned:)

    Like

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