Category Archives: MS and Marriage

Not taking my Ampyra anymore?

Totally Random Thoughts:

I’m considering not taking my Ampyra anymore.Ampyra_and_pills Any thoughts?

I sometimes feel like I would walk better if I just tried harder. Maybe concentrated more. If I were to gain some weight I wouldn’t be so easy to blow off balance.

Your thoughts:

Love, marriage and MS:FBwcB “In sickness and in health”, takes on a whole new meaning.

Your thoughts:

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Filed under MS and Marriage, MS and Oral Medication

MS, this is NOT a good time!

Photo Credit: Will Sterling http://www.sterlingpics.net/artist.php

Photo Credit: Will Sterling
http://www.sterlingpics.net/artist.php

This is a conversation I’m having with my former high school student. She graduated in 1996…that makes her 31 years old now. Geez!!

Bambi: Mrs. Smith!!! I have a question about MS. As you have probably noticed, I’m a hypochondriac. I’ve been having some leg spasms for the last yr, twitching in my jaw and recently, vibrations in my stomach. I googled my symptoms and webMD said it’s possible signs of MS. I FREAKED OUT! Am I overreacting? ( which I tend to do) Can u give me some insight? I’ve already scheduled a full physical…

Mrs. Smith: Slo ya roll, Timon! Wait for Pumba! In other words, stay outta WebMD. Yes I want you to do research, but wait until the real MD.s suggest something. What you’ve been experiencing COULD be neurological in nature, but they could also be spasms due to magnesium and/or potassium deficiency or simply dehydration. Twitching due to stress, you DID just get married MISSY. The point is, EVERYthing that MS causes, could be caused by a million other things. I’m glad you’ve got a physical scheduled. What kind of doctor is it?Take VERY good notes on what’s been happening into your doctors visit. Ask for explanations and let me know how it goes.Meanwhile, your assignment is meditation. Start with 3 minutes a day, increase the minutes. Work your way up to 30 and get back to me.

Bambi: Mediate??? For 3 mins??? Ok, so how do I do that? I can never seem to stop my brain from racing…unless I have a shot… #djm. I’m speaking against it today!! But I always worry about my health. My family has horrible medical history and I’m always freaking out. Theresa and Q. can attest to that.

Mrs. Smith: Hey Honey,  my doctor has me taking vitamin D3. Many ppl are Vit. D. deficient. It’s been discovered that higher levels of D3, lesson attacks in ppl with MS, and has SOME protection for those thought to be at risk for the disease. Lil.E. scared us with a neurological episode (false alarm) but her neurologist still wants her to take a Vit. D supplement daily of 1000 i.u. I take 2000 I.U. daily. Here’s where you come in. Vit. D. is naturally healthy for the nervous system, so why not? 1000 i.u. a day. It’s also good for strong bones, so there’s a double benefit. BUT, don’t over do it. Too much of anything is not good. As far as the meditation goes, I KNOW you Timon, and “wired for sound” is an understatement (LOL) YES Missy, meditate. You’ll be a better wife, mom, daughter, friend, and SELF. I mean it! It’s not hard and it’ll help stop your brain from racing. Although your racing brain was an asset in class. Check out my post on meditation to get started.

“How to Meditate in a Moment”

Learn more about : Vitamin D and MS

ps. Remember the day you and Pumba hid under my desk only to jump out, scare the crap out of me, and break into this routine. I couldn’t teach, for laughing 🙂 Great diversion!

COMMENTS:

Have you experienced any MS-like symptoms that were actually caused by something else?

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Filed under MS and Marriage, MS and Vitamin D deficiency, Uncategorized

It’s a Wheelchair kinda day!

FBwcB

Its 86 degrees out side and a gorgeous day. We spend 8 hours on the Schuylkill River in Philadelphia. Our daughter is here with her college Rowing Team, Univ. of Pittsburgh, to compete in the DAD Vail Regatta. We are very happy to see her Row!

Phone call to Dad last night: “I’ve been to the race sight and it is HUGE, I think you should think about bringing mom’s wheelchair.

Slightly frantic phone call this morning:”Dad, I am here again and I am sure Mom will need her wheelchair. Are you definitely gonna bring it? There’s NO WAY she’ll be able to do this without it!”

Of course we put it in the trunk, and I am grateful that she thought of me.

But…we get there and we have a problem! My husband drives a wheelchair like he drives his car, like a TWELVE YEAR OLD. Needless to say, I am not happy with this. This place is in no way wheelchair friendly. Technically, it is handicapped accessible, there’s even a Handicap Port-O-Potty.  The rest is only good if you want to roll in a straight line, up and down the sidewalk all day.  I have my camera and this’ll never work! Huge loss of freedom. We are rolling along with the crowd, and everything I see around me is beautiful. If I were walking, I could stop on a dime to get the shot. I could turn around to check things out from a different perspective. You can’t do that in a wheelchair. I struggle with the guilt of having him stop. Finally, I can’t take it anymore and I say, “Stop, pull over”, and he does. Now it’s time to use ALL of my marital diplomacy. My daughter and I lock eyes and I see in her expression, fear of the unknown. I slowly rise from the chair and go around the back of it. I hold my husbands’ arm and speak softly in his ear, “Honey, I want to get out and walk. I love you and I really appreciate you doing this for me. I know it’s hard in this heat and with all of these people but, I really need to get out and walk. I am miserable in the chair. Taking pictures is impossible. I need to be able to turn and move around for the shot, and I can’t do that in the chair. It’s killing me.”

Husband: “But Bay, that’s crazy! In this heat, with everything so spread out, there’s no…”

Cut off by me:”I’ll be fine.  I feel very strong and Estizer will be with me. I’ll stop when I’m tired, and rest. We’ve even got our cell phones, so I can call you when I’ve done enough.”  I think this is a great idea and with an affirming kiss I turn and join Estizer in front of the chair. She holds my hand and we begin to walk away.

But wait- WHAT’S THIS?

He’s still here. I turn and say, “Honey, you can go and I’ll just call you!” He says, “No, I’m going to stay with you”. I’m mortified. I say, “What? You’re just gonna follow us with the chair? We’re gonna look retarded!” He looks away from me and with a defiant tone in his voice says, “YES”.

We start walking and he stays with us as if this is perfectly normal. I walk about 100 meters and in THIS heat, it feels like a hundred miles. I need to stop and rest, but I’ve pushed it (determined to show him that I can do this). I don’t see anywhere close to go, and I need to sit NOW. I turn towards him and we connect.  We do that mind link thing, that married couples do.

Without a word, he says to me,” I knew I was right! It’s too hot and you shouldn’t be doing this”. Also, with no words, I say to him, “I love you and yes, you were right. Thank you” Then, I sit.

whol.team-MY002-416 copy

Comments and Thoughts:

How does the heat affect you?

15 Comments

Filed under Long Loving Marriages, MS and Family, MS and Marriage, Riding Out a Relapse

Fatigue- The Anti-Sex

We hadn’t had sex in a week and he had very subtly brought that to my attention say… the last SIX days or so! With this in mind, I try to manage my fatigue today accordingly… I go to the gym and get on the bike for 15 minutes (I’ve worked up to that) and leave. I get just a few things from the grocery store making sure not to stay too long. Just enough for dinner. I’m exhausted. Damn, a girlfriend calls and I excitedly get carried away and talk to her for 20 minutes instead of 5. I’m winded. Now I’m crashing.
Its 7:00p.m., my husband is home. I don’t cook dinner. He tells me to go lay down and fixes himself soup and a salad… I sleep. I awake, have dinner, and watch some TV with him, talk about our days, the kids, and various family matters. By the time we clean the kitchen, shower and go to bed, I’m exhausted, and the fun begins.
I turn my back to him, and then comes that familiar rub on the shoulder. You know the rub. The one that makes your mind start to have a very loud conversation with itself “I KNOW it’s been a week but there’s not a cell in my WHOLE body that’s up for this…not ONE, and I haven’t faked anything in a million years and that’s awful anyway for EVERYBODY! I’ve just got to tell him, there’s no other way but HOW? I should have told him at dinner that I’m too tired again I’ll never lie or have sex when I don’t want to have you ever done that it’s disgusting I’m too special for that so now I just have to break it to him it’s going to be a week and a “…the rub continues and he moves closer! He must not hear my thoughts. There’s a problem here!
The rub goes to a full touch and he actually says something! “Kiss me,” “WHAT!?” I say. I can’t believe it. I turn over to face him in all my nakedness “WHY would you say that?” (because surely you MUST know how I feel) Him, really confused now “ummm because I want you to? because I like it?” Me “But you must know what I’m over here thinking, you MUST feel the ANTI-sex chemicals coming out of my pores, I’m sure it’s like a pheromone or something that’s attracting you. You can even actually see it. That’s weird. Don’t you think that’s weird that I’m sending off anti-sex signals and you’re mis-reading them as real sex signals?” As he backs away from me he says,”No, the more you talk, they’re coming out as real anti-sex signals.” I think this is hilarious! I allow myself to get lost in the laughter. I am turned on by his humor, patience and perseverance. We go on to have amazing sex.

4 Comments

Filed under Awesome Sex, Long Loving Marriages, MS and Marriage