Tag Archives: Exercise

MS and Exercise: “But you look so good.”

Forgive me because I look so good. I would trade you in a heartbeat.


Physical Therapy is important to me. In every case when I’ve needed it, it has made a positive difference for me. Admittedly, doing the exercises at home is a lot less fun. I’m a social person. I get to know everybody there. I refer to the receptionist as my “co-worker”. We talk about all the things co-workers talk about: the kids, weather, recipes, weekends, gossip, and anything else good.

Now, I’m on my own. I need to DO things now that use my new strengths. Why not go to the playgrounds 🙂 I say hello to all the parents and even explain why I’m there. It removes the “creep” factor. I make friends. So far my friends list is only Finn, who’s 8 and his little brother Akai who is 5. He broke his nose out there before we met; yet, I was supposed to know that already, I’m an adult. 😦

On this particular day, the “Dad” said, “But you look so good. The things you can’t do…most people our age, can’t do.” Forgive me here, for the negative feelings this evoked: “That’s because YOU dad, and most people “our” age (He’s at least 15 years younger than I am) are 100 pounds overweight…just like you. They also don’t WORK as hard as I do, eat like I do, take the meds. that I do, or make the choices that I do, to stay as able as I do. They don’t leave the career they love, and the money that goes with it. They don’t “crash” 12 hours a day from fatigue, and have less sex.  Random I know but, no energy…no sex. Keeping my temperature down is so critical, I may shave my head in the summer while you go out tan. I’m a VEGAN for goodness sake, and you look like a steak! They’ve never been in a wheelchair, felt my pain, never used a cane, and never had to be carried up the stairs by their husband. THEY, Mr. Fat dad, take these things for granted. Forgive me because I look good. I would trade you in a heartbeat. Except the 100 pounds, you can keep that.”

Of course I didn’t say any of that, I paused, and said, “Well, ugh thanks…I guess”.

Truth is, I know Fat Dad has his own cross to bear and no, I wouldn’t trade him…EVER. I’ll keep my MS and all the crap that goes with it. It’s MINE and we’ve learned to co-exist well…well, well enough.


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Ringing Rocks

Needless to say when I awoke from that dream I was depressed. Heck! You were depressed just reading about it. Don’t worry, we’ll have more fun with that in my post on MS and Depression.
What’s most urgent right now is that I’ve got to take matters into my own hands! I just woke up from that nightmare and I’m going to Ringing Rocks right now dammit and nobody is going to stop me! Not even…ME. I use to just jump up and go do things because I loved the outdoors and adventure. I’ve decided…I’M GOING TODAY! So what if I need a cane, so what if it might rain all day, so what if it’s a long way and I don’t know where I’m going, just don’t drink ANYTHING(or I might have to pee in the woods and there’s poison ivy) and use the GPS. And for God’s sake, take my camera! NOW LET’S GO!
Destination: Ringing Rocks Park, Ringing Rocks Road, Upper Black Eddy, PA 18972

Mission Accomplished: My goal was simply to GET there! To not let a few obstacles keep me from going out the door. Here’s the report, after a long treacherous mountainous drive (that did make it more fun) I could go no farther than the parking lot. Problems were, one hand held the camera, one hand held the cane, one hand was still needed to balance on rocks as I climbed across them (maybe two) and still another hand to hold camera steady for shooting photos.
For today…JOB WELL DONE! and in my best TERMINATOR voice “I’ll Be Back”.

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Tide pooling and “The Dream”

My grade school sweetheart is there, Gregory Chatmen, at the vegetable mart. He lives in Southern California now and so do I, (not together Honey) San Bernardino. His kids are visiting and complaining about being bored and like everybody else he’s trying to stretch a dollar, and it hits me! I’ve got the best idea! We throw some water in the cooler in the trunk with some sandwiches and head for the beach. Not the beach really, but this rocky area I know about…agh, you’ll see I tell him. The kids are moaning because we’re not going to Disney. We just turn the radio up to drown them out. We go tide pooling! At the right time of day you catch the tide going out and it’s left these really amazing life forms in little pools among the rocks. When the tide comes back in, it will carry them back out…if they’re lucky. The kids were stoked! They are all over the place. The only rules are, don’t step on the life and don’t touch it. It’s all delicate and some of it may be poisonous (stingers and such). My all time favorite is the beautiful purple iridescent slug that’s as long as my foot. I can’t help but wonder , if this little bit is what washed up, what other beautiful fascinating creatures must be out there under the sea? UGH! I’ll bring my camera for sure tomorrow. Groggy… No there’s that other place tomorrow. Uhh, My mind wanders to the mountains, I see trees… I want to see, yeah…Ringing Rocks, that’s it! Its close, right? I’m going there today!

I look at the clock. It says 4:00 a.m.
That’s rain against my window and it’s dark.
I am dreaming.
Oh and…duh, I have MS and I haven’t seen Gregory Chatmen since grade school.
And…I’m using a cane now and I don’t live in CA anymore.
there will be no tide pooling.


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