Tag Archives: Menopause

MS hug or HEART ATTACK!

MS Hug or Heart Attack?

1:30 Home for lunch,  going back to work.

1:31 Heart pounding, chest pain

unnheart2

Ultrasound of my heart.

1:35 Left arm and hand hurt, radiating pain left from middle of back.

1:36 Pain increasing, using right hand to support left hand for relief.

1:36 Thought …WOW this hurts a lot. I’m okay, relax, take deep breathes. Back to work. Simple afternoon planned. Go.

1:50 Leave for work.

1:54 Nauseous, driving. Pull over. Pain sky rockets, call husband. I’ll be home, take me to the emergency room please.

2:06 Emergency room. Wheelchair.

2:08 E.R. check in, Husband gives insurance information and symptoms, parks car.

2:11 Toddler staring at me from Dads arms. My pain must look very scary to her. I force a smile.

2:12 Enters Rapid Response team. They whisk me away

I HEAR:EKG

I THINK:EKG not invasive. Sticky things on chest. No pain. Pain now …waaay over the top.

I HEAR:Heart Attack, Morphine, Nitroglycerin

I HEAR: Have you had any aspirin today? Swallow these.

I FEEL: Shirt coming off, sticky things going on.

I HEAR: Heart Attack.

I SEE: Husband listening to nurse.

I SAY: What do you mean HEART ATTACK? I’m not having a HEART ATTACK! Honey…this hurts.
I HEAR: You’ll feel better soon, morphine, nitroglycerine, Heart Attack.

I SAY: I can’t be having a heart attack, I’m a VEGAN!

I SEE: Mans unfriendly face close to mine with paper in hand.

I HEAR: SEE THIS! This says, in all ways, you’re a VEGAN having a HEART ATTACK!

I THINK: Screw you.

I SEE: Friendly face very close to mine saying, don’t worry, you’re going to see LOTS of people in the room doing LOTS of different things. It’s okay, just relax.

60 seconds later my clothes evaporate.

I THINK: WTH!

I SEE: My jeans moving toward my feet. No snaps, no buckles, nothing.

I THINK: OMG! But wait…my panties?! What if my period is on?

I SEE: Panties floating away, still inside jeans. No period. Thank you GEEZUS! Hello menopause.

I HEAR: Arteries blocked/ look inside/ heart working? Heart attack

I SAY: How?

I HEAR: Catheter/ groin/ artery/ heart/ look.

I THINK: Chest/sternum/ not cracked open /okay.

I SEE: New face, friendly, close to mine.

I HEAR: I’m Scott. I’ll be your bartender for the rest of the day.

I THINK: Morphine. Smile.

I SEE: I’m covered with a sheet.

I FEEL: Levitated.

I SEE: My toes, my husband, Scott, random people in hallway.

I SAY: My toes are really pretty. Honey, I need a toe ring.

I HEAR: Nothing.

I Feel: No pain.

heart. cathetermed

Can you see the catheter in my heart? The hook. Look closer. AWESOME

MS HUG or HEART ATTACK

Comments:

Have you ever experienced either?

What do YOU think it was?

Advertisements

18 Comments

Filed under Uncategorized

Tecfi-WHAT? Candy for my brain!

Tecfi- WHAT??

brain.candyCandy for my BRAIN! My new MS disease modifying drug (DMD)

Yeah, that’s right …I’m on a new MS disease modifying drug that I’ve never heard of, and it was only approved by the FDA last month! I’m the one who wants everybody else to take these drugs for a few years first, so that I can see what happens. Well, guess what? I don’t have a few years to wait.

Reality check: This disease existed a bazillion years with no help in site, so, it’s time to take action; well, more action. The very first drug was approved just as I was diagnosed. I started taking it a couple of years later; I was scared because it was so new. Now, they’re coming out so fast, I can barely keep up. Years ago, when my doc felt like I had reached the “glass ceiling” of Avonex (injected once a week), I switched to REBIF (injected three times a week). REBIF worked well enough, until I couldn’t tolerate it any longer. It, or ANY of the injectable medicines. After being on those for so long, the side-effects just wore me down. How lucky am I for this “burn-out” to occur, just when so many other drugs are being approved. Gilenya, Aubagio, Tysabri, and now…TECFIDERA!

I take a Tecfidera capsule twice a day and that’s IT; no more SHOTS! It’s the new “candy” for my brain.  I do look at it that way, when I think about the difference it will make on my future. It has also been known formerly as, BG-12, which is a super big plus to me. Back in July 2012, when I saw my favorite Neurologist, he promised me that “very soon” there would be two new drugs approved that he would agree to me taking. We have a great understanding; he knows what’s important to me and I know those same things are important to him, so I trust him. I call him “OZ, The Great and Powerful”. BG-12 was one of those drugs.

In clinical trials, it rivals the other disease modifying drugs in, relapse and reduction of disease activity shown on an MRI. Another super plus on my list – it has been used in Germany for decades, at much higher dosages, to treat Psoriasis.  There is still that little question I have about the blood brain barrier, and how THAT’S affected by this drug in the MS brain. If anyone knows, please tell me. Otherwise, we’ll find out in due time. What we DO know now, from its use in Germany, is that it does not cause death (that’s kinda important).

The lack of side effects pretty much sealed the deal for me. The most common one is, “flushing”. This lessens and usually goes away within the first month. It’s a sensation of heat, or itching, and a red blush in the skin. HA! That’s MENOPAUSE for a month; you don’t scare me! Bring it on!

Candy for my brain:)

Did I mention that this candy costs $8,900.00 for a one month supply? Have no fear…co-pay assistance is here! I pay $10.00 a month, and so can you. The drug company has a $10.00 co-pay assistance program. There are no income requirements.  You can enroll every year, as long as you take Tecfidera. People covered by Medicare, Medicaid, the Va/DoD, or any other federal program can get help from MS Active Source with the cost.

THIS IS NOT A COMMERCIAL! I do not work for the drug company. I am just starting a new medicine that I’m excited about. I want to share:)

COMMENTS and THOUGHTS: What have your experiences been with Tecfidera?

10 Comments

Filed under MS and Oral Medication, MS Drugs