Tag Archives: Speech Problems

Meet me for Coffee!

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We’ll set a time when you are free and so am I. No distractions please. You get a cup of coffee or tea at your house, and I do the same at mine. Then, whoever initiated the date makes the call, and we talk just like we would if I could see you. It’s really that simple.

If you’re ever limited in your ability to go out, it’s extremely important to keep your connection with others until you can do more. With MS, you can quickly lose touch; you don’t see it happening until it’s too late.  It’s such an unpredictable disease; you expect to be down for just a bit, but you never know. This withdrawal can lead to an unintended isolation, which leads to depression. It happens quickly. Friends call to talk and go places and you decline more and more. Your speech problems, your balance issues, your spasms, your fatigue. You really just don’t feel like going out.  Even talking on the phone can wear you out. It all takes so much energy. Eventually, they call less and you are relieved.

There are those few that hang in there. They don’t call as often, but they will still call, you can count on it. They’re the ones that understand because you’ve explained this to them when you were well, before the relapse. They call to say they don’t want to talk, the call is just to check on you, and to say that they love you.

Things you can do to make this easier:

1)      Most importantly, talk to your close friends when you are well. Explain to them how it feels when you are having a relapse, as best you can. Each relapse is different, but you can explain how things have gone in the past, and that they may be completely different but to please be patient.

2)      Send a blanket email or text to your selected friends.” I’m not answering calls or emails and such right now because my MS is acting up. Please don’t worry; I need to use my energy wisely.  Another note will come when I’m up to it. Meanwhile, keep the party going.”

3)      Answer calls when you can, but keep it simple. You don’t need to explain everything. “I know I haven’t answered your calls in a while but my MS is acting up and I feel crappy. Please call me back in a couple of days, (weeks, months).” Do not wear yourself out.

As soon as you can, do a little more. Start small. Answer more calls and even make some. Have coffee dates more often, and enjoy them.

Me and Ruthie 🙂300666_10200856069915856_673429886_n

COMMENTS: Please share the things that you do to stay connected that don’t require going out. We could use more ideas.

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Filed under Mental Well-Being, MS and Depression, Riding Out a Relapse

When MS gives us apples, make APPLESAUCE!

Student: “Miss Estizer why do you sound like that?”

Me: “Like what?”.

Student: “It’s gone now…NO! Like THAT!”

Me:”Oh…that. Well, I have something called MS, and sometimes it makes me talk funny. But, don’t worry, it’s not contagious.”

bigstock-Applesauce-being-made-using-a--30407207B-Smart after-school Photography class for At-Risk elementary school children, held at “The Banana Factory”. Provided by ArtsQuest, a non-profit arts organization that celebrates the arts in Bethlehem, PA.

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Student: “Why does it do that? And how come it goes away so fast. I thought you were doing it on purpose.”

Me: “Nope. It’s something that I can’t control. MS messes with my nerves. Do you know what your nerves do?”

Student: “Yea-uh. Well, sorta. They make your body move, right? But, they don’t have nothin to do with you talking.”

Me: “That’s half right, but they do soo much more! Blink your eyes, now swallow, now pull your hair. Did you feel all of that? Good, then your nerves are working great. Nerves do almost EVERYTHING in your body. They send messages to your brain and you don’t even have to think about it most of the time. When dust or smoke is around, your eyes just blink, right? When you want to drink a soda, you swallow, right? Did you have to say…ok throat, swallow now?”

Student: “Ewww, how about when you have to pee?”

Me: “Yeah…that too. When your bladder is full, you have nerves that take that message to your brain.”

Student: “And what about #2?”

Me: “Ok, ok, ok…I think you got it!  Sometimes my MS interferes with the way my nerves send the messages to my brain. When you hear me talk like that, my brain received a messed up message from my nerves. Or, the message was broken up, like your cell phone does sometimes, and my brain is confused.  Then, my nerves go, “Oh snap”! That wasn’t right, and then my nerves send it again- the right way.”:)

Student: “When, when, when you talk like that, you sound like you got applesauce in your mouth!”

Me: Laughter. When I try to speak again…it happens.

Students:  “Hey, hey, hey, SHHHH! There it is again! It DOES sound like applesauce!” The students that didn’t hear it before are now amazed.

Me: “Wait, wait, wait for it… it’s gone again, my nerves are working just fine now:). Yay! We can get back to work.”

The next time it happens, a few minutes later, the kids close to me hear it.

Student:  “Hey, hey, hey!! It’s here again! SHHHH and you can hear it too!”

The class goes silent and the kids and I make a deal.

Me: “When ANYONE hears it, they’ll tell the rest of the class, and everyone will be quiet and wait for it to pass. When it happens I can’t teach right, because I can’t talk right. If you guys keep talking, I’ll have to wait for you to be quiet EVERY time, and that’ll take forever. We’ve got cool things to go out and do! So how about you all just be quiet EVERY time it happens, and wait a second for my nerves to get straight. THEN I’ll keep going”.

OLYMPUS DIGITAL CAMERAIt became a game, it was genius. I couldn’t have planned it better if I had tried!

 

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Filed under Ilness and The Arts, MS Symptoms, Riding Out a Relapse